Expert Reactions: R. Mark Adams, Principal
How collected data will ultimately be put to use is key to understanding the give-and-take process that is going on among the stakeholders in HIE. The rules and regulations around the management and exchange of health data will reflect the ability to make policy decisions about how that data will ultimately be used, and what benefits the stakeholders will accrue as a result. These stakeholders may be patients, payors, providers and/or government entities- each of whom has a unique interest in what derived value can be created from the data. This requires a creative balancing act between the interests of the collectors and potential end-users of that data, and the patients and providers from whom it will have to come. The rules that exist today and those that are likely to emerge out of the processes described by Ms. McGraw are likely to continue to empower patients and others to decide the uses to which their health data can be put. It will thus be increasingly critical for those who want to make use of HIE data to be able to demonstrate clear and direct benefit to those stakeholders as a means of securing their buy-in, both for the process itself and the ongoing generated data.
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